00:36:54 Christine: Can't raise my hand but I can tlk 00:37:55 Christine: I cant raise hand 00:38:25 James Manley: Good morning, TBI family! Glad to see everyone. Been doing some pro-active "safe mobility" maintenance. Physical therapy and Occupational therapy for my gait, activities, and overall strength. Whew! And a lot more napping in-between. 00:45:34 Christine: Not sure why I cant raise my hand. Might be because I am not on the app. 00:45:46 Larry in Alberta, Canada: Hello James... 00:46:42 Lorrie "Tigerlily" Herrmann: It really surprises me how MUCH recovery time it takes from an hour of physical therapy. Lots of naps and PLENTY of WATER to keep the muscles working. 00:47:06 Suzanne James-Peters: Hi James, So happy you joined us today. ๐Ÿ˜Š 00:47:18 Zerra: Reacted to "Hi James, So happy you joined us today. ๐Ÿ˜Š" with โค๏ธ 00:48:22 Lorrie "Tigerlily" Herrmann: Thank you for sharing Carrie Ross! That was so poetic and completely understood! 00:48:55 Robert: Good morning Celeste and TBI family how are you all doing question about dizziness and unbalance at no warning I had vertigo years ago where I went to holistic dr he did procedure no sure it was epley but any tips how to deal with it please 00:48:56 Samsung SM-G996U: I am back 00:50:09 Lorrie "Tigerlily" Herrmann: Reacted to "I am back" with ๐Ÿ‘ 00:52:26 Beatrice: I was thinking the other day how Shaken Babies go through a TBI but not knowing what their "normal" would have been, those that recover might not realize life struggles they might have that parents see as "normal" to them and don't realize they might need support or interventions. There should be a study on Shaken Babies as they grow up, if there hasn't been yet. 00:53:21 Heather Tumey: Brilliant!! 00:53:34 Heather Tumey: You are on to something 00:54:38 CHRISTIAN J: Takes time 2 get a hold of!!! 00:55:35 CHRISTIAN J: Hudson Brewer had a book that helps 00:56:45 Lorrie "Tigerlily" Herrmann: Replying to "I was thinking the o..." It is heartbreaking. Too many adults think it is cute or okay to shake or toss children around. I even believe there is damage from high speed roller coasters and amusement park rides that goes unrecognized. There are warnings on the rides for "height" but parents don't realize those height roles might also indicate brain maturity. 00:57:30 Zerra: Reacted to "I was thinking the other day how Shaken Babies go through a TBI but not knowing what their "normal" would have been, those that recover might not realize life struggles they might have that parents see as "normal" to them and don't realize they might need support or interventions. There should be a study on Shaken Babies as they grow up, if there hasn't been yet." with ๐Ÿ‘Œ 00:57:45 Lorrie "Tigerlily" Herrmann: Replying to "I was thinking the o..." Yet even adults get concussions on amusement park rides. 00:58:54 Kirk Paige: Reacted to "Yet even adults get ..." with ๐Ÿ‘๐Ÿป 00:59:36 amy: Reacted to "Yet even adults get ..." with ๐Ÿ˜ณ 01:01:11 Heather Tumey: There are resources about shaken baby syndrome and TBI? 01:01:17 Samsung SM-G996U: My brain has been telling me that I deserve to buy this stuff because for 4 years after my TBI, I didnt buy anything or really go anywhere. 01:01:23 Heather Tumey: the correlations? 01:01:55 Rain Yocky: brb 01:02:23 Carolynโ€™s iPhone: My 2 year brain anniversary is this Thursday 4/30 01:02:56 Samsung SM-G996U: My 5 yr was last week. Had a few celebratory toasts. 01:03:30 Lorrie "Tigerlily" Herrmann: Replying to "My 2 year brain anni..." I hope you celebrate your recovery! Congratulations! So glad you have survived and you are here with us! 01:03:43 amy: Reacted to "My 5 yr was last wee..." with ๐Ÿ‘ 01:05:19 Samsung SM-G996U: Thanks 01:05:24 Lorrie "Tigerlily" Herrmann: The Craving Mind by Judson Brewer is a book that may help with the impulsivity. 01:05:36 Heather Tumey: is there a recommended book list on the website? 01:05:49 Lorrie "Tigerlily" Herrmann: Reacted to "is there a recommend..." with ๐Ÿ‘ 01:06:27 Beatrice: The excercise is called the Epley Maneuver and there are videos you tube on how to do it. I keep getting my ear crystals dislodged as well and lasts for several weeks, but the excercise helps. However, the excercise can make you very very dizzy as you do it so be cautious. 01:06:49 rosa: I get it getting goff and on car, among other movements. 01:07:07 Celeste Palmer: yes there are books on tbibridge.org 01:07:23 CHRISTIAN J: "The Craving Mind" Judson Brewer 01:10:41 Lorrie "Tigerlily" Herrmann: Replying to "is there a recommend..." When you go on the website for TBIBridge.org navigate across the tabs at the top to go to the "Resources" page and you will find a list . 01:10:48 Rain Yocky: gotta go get redy for ride pickup. See y'all next week. 01:11:23 Heather Tumey: agrred Kirk 01:11:27 CHRISTIAN J: My trip to Guatemala wasn't bad at all...again I did everything thoughtfully and took my time 01:11:38 Heather Tumey: Be patient and plan 01:12:36 Beatrice: Even before my TBI I'd get dizzy on boats and planes. I take dramamine and I've been fine. I always take my cane when flying for support. Also, why not try going on a boat ride like whale watching where it's a short period and see how it goes. 01:13:03 Lorrie "Tigerlily" Herrmann: Slow down,pay attention, observe, listen--Be patient and plan--helpful for everyday living as well as travel. 01:13:41 CHRISTIAN J: Everywhere I go, I always find spots to sit and rest, I take naps in my car all the time! 01:14:00 Lorrie "Tigerlily" Herrmann: Reacted to "Everywhere I go, I ..." with ๐Ÿฅฐ 01:14:12 Zerra: Reacted to "Everywhere I go, I always find spots to sit and rest, I take naps in my car all the time!" with ๐Ÿ‘Œ 01:14:15 Robert: Thank you for all the information it helps to get help god bless my cousin April Fernandes for putting in touch with your great group 01:14:27 Kirk Paige: Be prepared with the cane on a plane. A lot of Security won't let you have a cane. 01:14:50 Lorrie "Tigerlily" Herrmann: Replying to "Everywhere I go, I ..." I keep a "nap kit" in my car too. A neck support pillow, eye mask, and a beach towel or blanket. 01:14:59 Marc: I've been on two ocean cruises, one river cruise, and numerous flights. Haven't had any trouble. 01:16:10 Lorrie "Tigerlily" Herrmann: Replying to "Everywhere I go, I ..." oh, and I carry earplugs too. Just remember to leave the window open a little bit. 01:16:47 Rob N: Start taking the Dramamine a day before you go to fully get it in your system. Taking it just before is less effective. Iโ€™ve flown a number of times and the flight was ok but there was always a physical/emotional toll to pay after the flight. For me it meant a day of rest once I landed 01:16:49 Natalia - Speech tx Group: Casa took a group to Ontario Aiport and got them. It was such an easy process. 01:16:54 Suzanne James-Peters: \ 01:16:57 Lorrie "Tigerlily" Herrmann: HiddenDisabilities website has the sunflower 01:16:58 Jodie Conley: they gave us the lanyard at the check in at the air port 01:17:06 VinCenT: A symbol for non-visible disabilities 01:17:28 Lorrie "Tigerlily" Herrmann: hdsunflower.com 01:17:35 Samsung SM-G996U: Speaking of shopping, I've been addicted to consignment/thrift shops. A new one I found the $ goes to the less fortunate, poverty areas in my county. Instead of donating, I shop. That's my excuse. 01:18:10 Larry in Alberta, Canada: Breanne has had her hand up for a while... 01:18:22 Breanne Boyle: Replying to "Breanne has had her ..." Itโ€™s okay! Itโ€™s about this topic. ๐Ÿ™‚ 01:18:35 Heather Tumey: Thats brilliant about mny thrift store shopping! I am donating!! 01:18:41 Breanne Boyle: Reacted to "Breanne has had her ..." with โค๏ธ 01:19:02 Lorrie "Tigerlily" Herrmann: Reacted to "Casa took a group to..." with ๐Ÿ‘ 01:19:32 James Manley: Reacted to "Start taking the Dr..." with ๐Ÿ™ 01:19:48 Samsung SM-G996U: Reacted to Thats brilliant abou... with "โค๏ธ" 01:20:53 Jodie Conley: never been on a plane and not planning to ever be on one ;) 01:21:13 VinCenT: HERE SFO BAY AREA 01:22:21 Samsung SM-G996U: Good to know Breanne 01:22:43 Rob N: Iโ€™ve cruised several time and having a balcony was crucial. Dramamine before and daily through the cruise. Have fresh air made the trip much easier. Did on without and it wasnโ€™t good 01:22:56 Lorrie "Tigerlily" Herrmann: Well before scheduling your first flight after TBI you can test your ability to change altitude by having someone drive you up a mountain. Take a "field trip" to a mountain community where you can walk or hike or shop and hang out for awhile before coming back down. You can determine on an easier basis how well you can tolerate the altitude change. 01:23:17 VinCenT: NYC 01:23:44 Heather Tumey: where do you get the card 01:23:53 Heather Tumey: is it part of the lanyard? 01:23:56 Marc: I put the Brain Injury card on the sunflower lanyard. 01:24:11 Natalia - Speech tx Group: We're heading out, Thank you all! 01:24:49 CHRISTIAN J: www.brainlaw com 01:25:23 Lorrie "Tigerlily" Herrmann: https://brainlaw.com/brain-injuries/card/ 01:27:23 Samsung SM-G996U: Replying to "Thats brilliant abou..." I just bought 10 books for $1 at this thrift shop. I will re donate in those little library free books in the neighborhood 01:28:09 amy: My family feels my anniversary is too long, its nice to see people celebrqting it instead of feeling put down by people around me for it "taking too long" 01:31:00 Beatrice: We all have our different struggles as a result of our TBI. But it's good to try out things becuase we will never know if we can if we put limits on ourselves. We survived a TBI, so we are stronger than we think! A few months ago I went to Japan- Survived a 12 hour flight, got through a Japan's airport, figured out transportation and walked billions of steps (it is true, just walk walk walk!) all without knowing the language. Everone was so nice and helpful. I was scared to go, but oh how much fun it was! 01:31:42 Lorrie "Tigerlily" Herrmann: Carrie, Is it a feeling only associated with oncoming anxiety or is it an awareness sensation that seems to just randomly occur? 01:33:23 Pilar: Anxiety can be alot especially when you arenโ€™t familiar with the symptoms that is can cause. Sadly im used to it now after many years of panic attacks! 01:33:31 Lorrie "Tigerlily" Herrmann: One thing that helps is to "reframe" by naming OUTLOUD the feeling that is arriving. By naming it outloud it gets it out of your head and interrupts the sensation. 01:34:26 James Manley: Thanks for the refresher on relaxation/finding your anchors!Can anxiety also come from random post-TBI emotional dysregulation? 01:34:40 Zerra: Reacted to "Thanks for the refresher on relaxation/finding your anchors!Can anxiety also come from random post-TBI emotional dysregulation?" with โค๏ธ 01:34:57 Celeste Palmer: yes James definitely 01:34:59 Pilar: Plus your body is hypersensitive esp after a TBI and you could just get a wave of anxiety from a sensation you arenโ€™t even aware of, the light changing, a sound, a smell etc. you dont even know why but you just feel a pang of panic or misc anxiety symptoms in your body 01:36:22 amy: Reacted to "Plus your body is hy..." with ๐Ÿ‘ 01:36:54 Lorrie "Tigerlily" Herrmann: Replying to "One thing that helps..." LIke a naturally occurring pain reliever...what happens when someone stubs their toe? They usually cry outloud OUCH. It doesn't completely take the pain away but it reframes the brain to think---"what happened? Am I okay? Maybe I should check it out to see if it is bleeding or broken? Am I in danger? " This talking out loud uses a different part of the brain and can help to calm the part that is hurting or out of order. 01:36:56 Heather Tumey: shame on them! i am so sorry 01:37:05 Heather Tumey: you ar brave 01:37:11 Zerra: Reacted to "you ar brave" with โค๏ธ 01:37:27 Pilar: Suzanne im sorry you had to deal with that people can be so selfish sometimes 01:37:37 Zerra: Reacted to "Suzanne im sorry you had to deal with that people can be so selfish sometimes" with โค๏ธ 01:37:56 Samsung SM-G996U: ๐Ÿ˜ก 01:38:04 Beatrice: Thank you for sharing Suzanne. 01:38:12 James Manley: I'm glad you shared your story Suzanne, and the strategies for calming - yet another reminder that you can use them anytime, anywhere! 01:38:30 Lorrie "Tigerlily" Herrmann: Replying to "One thing that helps..." Even to simply say aloud "I am hurting. Do I need help?" can reframe the mind. 01:39:23 Pilar: I think folks get mad about service dogs sometimes because personally ive had people claim they have a service dog who is just their pet they want to bring on the plane etc, with no vest or anything. 01:39:35 Beatrice: What kind of dog is Bella? 01:40:05 James Manley: Reacted to "Plus your body is hy..." with ๐Ÿ™ 01:40:49 Pilar: Yeah people do abuse the service animal thing, so maybe thats why people get mad but obviously threatening you is insane 01:41:53 CHRISTIAN J: We have to do a documentary on tbi life and show the world how we live! 01:43:11 Beatrice: Replying to "We have to do a do..." That sounds like a great idea! 01:43:20 Lorrie "Tigerlily" Herrmann: Have a great week Y'all! I'm not able to stay long today. 01:44:38 Samsung SM-G996U: How did you start the service dogs process? I have been thinking about it. 01:45:06 Celeste Palmer: Chris I did a TBI documentary in 2010 it is time to do another 01:45:14 Lorrie "Tigerlily" Herrmann: Replying to "How did you start th..." Suzanne is great resource to share on this topic. 01:45:56 Lorrie "Tigerlily" Herrmann: Replying to "How did you start th..." Canine Companions Service Organization 01:46:15 Pilar: Reacted to "Chris I did a TBI do..." with ๐Ÿ’ช 01:46:17 Robert: Have a blessed day TBI Family so much appreciated 01:46:24 Breanne Boyle: Reacted to "Chris I did a TBI do..." with ๐Ÿ’ฏ 01:46:29 CHRISTIAN J: Reacted to Chris I did a TBI do... with "๐Ÿ’ช" 01:47:48 James Manley: Thank you Celeste~~~ 01:47:51 CHRISTIAN J: God Bless you family!!